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Intelligence is not the ability to store information, but to know where to find it.

Now You Know Where To Find It

Albert Einstein

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Lighting the Way to an Inclusive Society

Accessible Cities SA
DISA New logo

Sometimes, we all just need a helping hand
from someone who gets it!

Anonymous

DeafBlind

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Deafblindness is a combination of vision and hearing loss that significantly impacts a person’s ability to communicate, access information, and navigate their environment.

It’s not defined by specific levels of hearing or sight loss, but rather by the combined effect on daily life. The key is that the dual sensory loss creates challenges that require specialized support and accommodations. 

What Are You Looking For?

1. About DeafBlindness
2. Causes of DeafBlindness
– Specific Conditions and Syndromes that cause DeadBlindness
3. Other Useful Links: Hearing Impairments

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About DeafBlindness

DeafBlind differs from most other disabilities, in that it is not defined by a set amount of hearing or vision loss in decibels or visual acuity, but rather by the functional impact of that loss. A person is considered deafblind if their combined hearing and vision impairment leads to difficulties in communication, access to information, and mobility. The experience of deafblindness can range from mild to severe. Some individuals may have some degree of hearing or vision, while others have little to none. 

The support and accommodations needed by individuals with deafblindness vary greatly depending on their specific sensory losses and their individual needs

1. Causes of DeafBlindness

DeafBlindness can be caused by a wide range of genetic, medical, and environmental factors. Some common causes include Usher syndrome, age-related eye and ear problems, and complications from illnesses or injuries like meningitis, encephalitis, or head injuries.
Congenital (present at birth) or Acquired (developed later in life):

Congenital: These causes are present at birth or occur early in life and can include genetic syndromes like Usher syndrome, CHARGE syndrome, or Alport syndrome. 

Acquired: These causes develop after birth and can be due to various factors, including:
Age-related hearing loss and eye problems: These can lead to gradual loss of hearing and vision over time. 
Illnesses and infections: Conditions like rubella, cytomegalovirus, or meningitis
Brain injuries: Traumatic brain injuries or strokes can affect both hearing and vision. 
Trauma: Injuries to the ears or eyes can cause hearing and vision loss

deafblind man with hands covering his ears and eyes

Specific Conditions and Syndromes that cause DeafBlindness:

Usher syndrome: A genetic condition causing progressive hearing and vision loss. 
CHARGE syndrome: A rare genetic disorder that can affect multiple organs, including the ears and eyes. 
Alport syndrome: A genetic disorder causing kidney disease and hearing and vision loss. 
Goldenhar syndrome: A condition affecting the structure of the head and face, which can also cause hearing and vision problems. 
Congenital Rubella Syndrome (CRS): Infection with rubella during pregnancy can lead to deafness, blindness, and other developmental problems. 
Retinitis Pigmentosa: A genetic eye disease that causes progressive vision loss. 
Age-related eye diseases: Conditions like age-related macular degeneration, cataracts, and glaucoma can lead to vision loss. 
Meningitis: Inflammation of the membranes surrounding the brain and spinal cord, which can cause hearing loss. 
Encephalitis: Inflammation of the brain, which can cause hearing and vision loss. 
Head injury: Trauma to the head can cause brain damage and subsequent hearing and vision loss. 

Disclaimers and References

DiSA is committed to promoting the rights, dignity, and inclusion of persons with disabilities as outlined in the White Paper on the Rights of Persons with Disabilities. We strive to ensure that all content on our website reflects appropriate, respectful, and inclusive language in alignment with these principles.

However, we also provide a platform for companies and organisations to advertise their services and products. While we encourage advertisers to adhere to correct terminology and inclusive practices, DiSA cannot guarantee the accuracy or appropriateness of the language used by external parties in their content.

Please note: Any views, language, or terminology used in advertisements, promotional material, or external links do not necessarily represent the views of DiSA.

DiSA disclaims any responsibility for inaccuracies or language that may not align with the White Paper or best practices for disability terminology.

Should you however encounter language or content that you believe is inappropriate or offensive, we encourage you to contact us at info@disa.org.za, so that we can address the issue.

DiSA remains dedicated to fostering a respectful and inclusive environment for all individuals. We appreciate your understanding and collaboration in supporting our mission.


While we strive for accuracy and clarity, AI-generated visuals may not always reflect real-life conditions or representations.
In addition, we feature authentic images and videos of actual instances, events, circumstances that have occurred, as well as products and services supplied by companies who advertise with us.

These authentic visuals are intended to accurately depict our content or the offerings of our advertising partners.
If you have any questions or concerns about the content displayed on this site, please feel free to contact us.

DiSA provides a platform for companies and organisations to advertise their products and services to assist persons with disabilities and their families. While we make every effort to list reputable and credible service providers, the inclusion of any company, organisation, product, or service on our website does not constitute an endorsement or guarantee by DiSA.

Please note the following: DiSA is not involved in the delivery, quality control, or customer service of any product or service offered by advertisers listed on our platform.

Any agreements, purchases, or arrangements made between users of this website and advertisers are solely between those parties. DiSA is not responsible for the outcome of such interactions.

DiSA disclaims any liability for dissatisfaction, damages, or disputes arising from products or services supplied by companies or organisations listed on our website.

We encourage users to thoroughly research and verify any service provider or product before engaging with them. If you have concerns or encounter issues with an advertiser listed on our platform, please let us know at: info@disa.org.za. We value your feedback to help maintain the integrity of our platform.


While we strive for accuracy and clarity, AI-generated visuals may not always reflect real-life conditions or representations.
In addition, we feature authentic images and videos of actual instances, events, circumstances that have occurred, as well as products and services supplied by companies who advertise with us.

These authentic visuals are intended to accurately depict our content or the offerings of our advertising partners.
If you have any questions or concerns about the content displayed on this site, please feel free to contact us.

DiSA is committed to providing accurate and up-to-date information to assist persons with disabilities and their families. However, the nature of online content and external resources means that information can change frequently.

Please note the following: DiSA cannot guarantee the accuracy, completeness, or reliability of all information on our website, particularly information obtained from external sources or links to third-party websites.
External websites may update or remove content without notice, which can result in broken links or outdated information. DiSA is not responsible for the content, accessibility, or functionality of external websites.

While we make every effort to keep our information current, some content may become outdated over time.
We encourage users to verify information directly with the relevant third parties or organisations before making any decisions based on the information found on our platform.

If you encounter a broken link or outdated content, please notify us at: info@disa.org.za and we will address it as soon as possible.
Thank you for understanding and helping us maintain a reliable and accessible platform.


While we strive for accuracy and clarity, AI-generated visuals may not always reflect real-life conditions or representations.
In addition, we feature authentic images and videos of actual instances, events, circumstances that have occurred, as well as products and services supplied by companies who advertise with us.

These authentic visuals are intended to accurately depict our content or the offerings of our advertising partners.
If you have any questions or concerns about the content displayed on this site, please feel free to contact us.

The Information services and website that we offer free of charge, is privately run and funded and is not run or funded by the government. We rely on advertising, paid services and donations to supply and improve this Free information service that we do provide.

The Companies, Clubs, Schools and Organisations that are listed on this site, have advertised or made donations to the Website and have therefore assisted us be able to provide this free Service.
Please support them as they have supported Us and please contact us via info@disa.org.za, if you can advertise with us or would like to make a donation. Alternatively, visit our “Support Us” page to find out how you can support us or acquire our services. – Thank You.

If you encounter a broken link or outdated content, please notify us at: info@disa.org.za and we will address it as soon as possible.
Thank you for understanding and helping us maintain a reliable and accessible platform.

Please Note: We do assist with inquiries via email but may need to send or copy your details and inquiry to various other organisations, companies or government departments, that we sometimes consult, so that we can help you in the best way possible.
If you have any objection to us sharing your query or contact details, please notify us in your email. We will only share your information to assist you and will never sell or use your personal information for any other purposes.

DiSA waivers any liability for what happens if information is shared or used for marketing or other purposes by other organisations who do have consent to view such information.


While we strive for accuracy and clarity, AI-generated visuals may not always reflect real-life conditions or representations.
In addition, we feature authentic images and videos of actual instances, events, circumstances that have occurred, as well as products and services supplied by companies who advertise with us.

These authentic visuals are intended to accurately depict our content or the offerings of our advertising partners.
If you have any questions or concerns about the content displayed on this site, please feel free to contact us.

Please note that this website uses images and videos that are AI-generated and created to visually represent certain information, concepts or scenarios for illustrative purposes.


While we strive for accuracy and clarity, AI-generated visuals may not always reflect real-life conditions or representations.
In addition, we feature authentic images and videos of actual instances, events, circumstances that have occurred, as well as products and services supplied by companies who advertise with us.

These authentic visuals are intended to accurately depict our content or the offerings of our advertising partners.
If you have any questions or concerns about the content displayed on this site, please feel free to contact us.

Disability Info South Africa (DiSA) is committed to protecting your personal information in compliance with the Protection of Personal Information Act (POPIA), Act No. 4 of 2013. By using our free information service, you acknowledge and agree to the following:

Collection of Personal Information:
DiSA may collect and process your personal information (such as name, contact details, and inquiries) solely for the purpose of assisting you with your requests and providing relevant information or support.

Use and Storage:
Your personal information will only be used for the purpose it was collected for, we may need to send or copy your details and inquiry to various organisations, companies or government departments, that we sometimes consult, so that we can assist you in the best way possible.
If you have any objection to us sharing your query or contact details, please notify us in your email. We will only share your information to assist you and will never sell or use your personal information for any other purposes.
DiSA implements appropriate measures to secure your personal information against unauthorized access or loss.

Consent:
By submitting your details through our Contact Form, or contacting us via our email address, you consent to allow DiSA to process your information as outlined in this disclaimer. If you are not comfortable with DiSA sharing your information for the above purposes, please contact us directly at info@disa.org.za.

Access and Updates:
You have the right to request the deletion of your personal information at any time.
To do so, please contact us at: info@disa.org.za.

Third-Party Websites:
DiSA is not responsible for the privacy practices of external websites linked on our platform. Users are encouraged to review the privacy policies of third-party sites before sharing personal information.
For any queries or concerns regarding the handling of your personal information, please contact us at: info@disa.org.za.
Thank you for trusting DiSA to support you with accessible, inclusive, and reliable information.

ABOUT US
DiSA is a non-profit organisation (NPO) dedicated to empowering persons with disabilities by providing easy access to information, advocating for inclusion, and supporting equitable access to both the built and digital environments.

CONTACT
Email: info@disa.org.za
Cell: 084 504 9176
WA: 084 504 9176

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